Please use this identifier to cite or link to this item: http://hdl.handle.net/10125/63440

Investigating Values in Personal Health Data Governance Models

File Size Format  
POSTPRINT 2017 Winter-Davidson AMCIS.pdf 310.11 kB Adobe PDF View/Open

Item Summary

dc.contributor.author Winter, Jenifer Sunrise
dc.contributor.author Davidson, Elizabeth
dc.date.accessioned 2019-10-07T21:34:43Z
dc.date.available 2019-10-07T21:34:43Z
dc.date.issued 2017-08
dc.identifier.citation Winter, J. S., & Davidson, E. (2017). “Investigating values in personal health data governance models.” 23rd Americas Conference on Information Systems (AMCIS). August 2017, Boston, MA.
dc.identifier.uri http://hdl.handle.net/10125/63440
dc.description Conference paper
dc.description.abstract In this paper, we seek to deepen discourse on health data governance beyond the important issues of privacy and data security to consider what types of value are potentially afforded by personal health information (PHI) data and, importantly, whose values and interests shape governance structures and goals toward realizing value. We conducted a discourse analysis of texts addressing PHI data use and governance. Through analysis of a broad array of documents using qualitative analysis and guided text mining, we identified six overlapping, but distinctive, models for PHI governance. Each model presents an array of stakeholders, value to be realized from analysis, assumed stewardship roles, and governance structures and goals. This analysis extends consideration of widely shared governance goals, highlighting possible issues and conflicts among actors’ values and interests, particularly when data “slip” between governing models. We consider policy implications and areas of future research from this analysis.
dc.format.extent 10 pages
dc.language.iso en-US
dc.subject personal health data
dc.subject Privacy
dc.subject data governance
dc.subject discourse analysis
dc.title Investigating Values in Personal Health Data Governance Models
dc.type Conference Paper
dc.type.dcmi Text
prism.publicationname Americas Conference on Information Systems
prism.volume 2017
Appears in Collections: School of Communications Faculty & Researcher Works


Please email libraryada-l@lists.hawaii.edu if you need this content in ADA-compliant format.

Items in ScholarSpace are protected by copyright, with all rights reserved, unless otherwise indicated.